It was a pleasure to meet and reconnect with members of the LGMD community at the 2023 International LGMD Conference in Washington, D.C.! For those who weren’t able to attend in person, we’re sorry we missed you!

Sarepta was proud to sponsor the conference and enjoyed the opportunity to engage with attendees and provide informational materials at our table. All handouts that were at the table are available for download below.

Gene Therapy 101 Booklet

Gene Therapy 101 Booklet
All chapters of Gene Therapy 101, an educational series Sarepta published in the 2023 issues of the LGMD News Magazine

A Guide to Genetic Testing for LGMD

A Guide to Genetic Testing for LGMD
An introductory overview of genetic testing, including how genetic tests are done and what potential test results to expect

LGMD ICD-10 Diagnostic Codes

LGMD ICD-10 Diagnostic Codes 
An overview of ICD-10 codes and their importance for the LGMDs

LGMD ICD-10 Diagnostic Codes – Wallet Card 

LGMD ICD-10 Diagnostic Codes – Wallet Card 
Table of LGMD-specific ICD-10 codes. Print and keep one in your wallet and bring it to your next doctor appointment!

If you wish to speak directly to a member of the Sarepta Patient Affairs team, please email Advocacy@Sarepta.com.

Learning about your experience living with LGMD is an important component of drug development. We invite you to please take a short (~5 minute) post-conference survey below. Your responses will be kept confidential and are for informational purposes only.

Thank you for taking the time to complete this survey! Please make sure to complete the Stay Connected form at limbgirdle.com/stay-connected to receive updates from us.